Dementia Community Calendar July 26, 2019

Alzheimer’s of Central Alabama Lunch & Learn, Tuesday, July 30, 11:30 – 1 pm, Somerby, St.Vincent’s 119,Your Life, Your Legacy with Marvin A. Chandler.  Chandler will be offering advice and guidance on making final arrangements.  He is a Family Service Counselor with Ridout’s Valley Chapel and a funeral director.  See attached flyer.  Lunch is free, but space is limited and reservations are required, mpiggott@alzca.org.

Glow for a Cure, Alzheimer’s of Central Alabama’s Night Golf Tournament, Friday, August 2, presented by the Jr. Board.  All proceeds will benefit Alzheimer’s of Central Alabama’s Pre-Doctoral Scholars Program in Alzheimer’s research at UAB.  Spectator tickets are available for $25 and include a taco buffet and live music.  See attached flyer or vholder@alzca.org.  

The Virtual Dementia Tour is being offered at 2 locations.  It is free but reservations are required:

  • Friday, August 2, 9 – 2, Cooper Green Mercy Health Services.  1515 6th Avenue South, Birmingham.  RSVP to Dedra Lewis, 205-325-5567.
  • Monday and Tuesday, August 29 – 30, 9 – 3, Rocky Ridge Independent Retirement Living.  3517 Lorna Road, Hoover.  RSVP to Danielle Carlton, 205-989-6500.

The Virtual Dementia Tour (VDT®) is the original and ground-breaking, evidence-based and scientifically proven method of building a greater understanding of dementia through the use of patented sensory tools and instruction based on research conducted by P.K. Beville, M.S., a specialist in geriatrics and the founder of Second Wind Dreams®.  Sponsored by the Jefferson County Services and Workforce Development Senior Services Division.

Dementia Care Workshop, Friday, August 9, 9 – noon, Canterbury United Methodist Church.  Hear Mel Coppola, a Certified Educator and Mentor with the Eden Alternative, speak on the seven domains of well-being and how to apply this person centered approach to our friends living with dementia. To RSVP, please contact Valerie Boyd at 874-1523 or email Valerie.boyd@canterburyumc.orgSee attached flyer.

The Canterbury-Beeson Forum on Aging, Saturday, August 10, 8:15 – 3:45, Canterbury United Methodist Church.  This is our community’s largest seminar on aging and will feature Mike Oliver & Rev. Catherine Oliver, RN, on “Life with the Lewy”.  For more information, contact Jennifer Brasher / 871-4695 /beeson@canterburyumc.org.  See attached flyer.

Elder Care Conference, Saturday, August 17, 8 – noon, First Baptist Church, Trussville.  Panel includes experts legal issues and community resources.  There is no charge to attend.  See attached flyer.

Walk to Remember, benefitting Caring Days Adult Day Care Center, August 17, 10 – 11:30, inside University Mall, Tuscaloosa.  205-752-6840 or www.caringdays.org.

New Alzheimer’s & dementia support group, Tuesday, August 20, 5:30 – 6:30, Lakeview Estates, 2634 Valleydale Road.  205-981-0001.   

17th Annual Caddell Alzheimer’s Conference, Tuesday, August 27, Epic Church, Decatur.  Excellent line up of speakers.  256-353-1160 or www.mhainmc.net.  Benefits MHA Alzheimer’s program. Caddell2019brochure

Alzheimer’s of Central Alabama’s Walking to Remember Kick Off luncheon, Thursday, August 29, 11:30, at Danbury.  Join us to learn more about the services and programs provided by ACA.  Sign up to be a team captain and gather your friends and family to Walk with you Saturday, November 2, inside the Riverchase Galleria. vholder@alzca.org.

Alzheimer’s in Alabama:  Alzheimer’s of Central Alabama’s annual conference, Friday, October 18, Canterbury United Methodist Church.  Our special guest will be Jamie Tyrone, who is in a rare group of only 2% of the population who carry 2 copies of the ApoE4 gene, which means she has a 91% chance of developing Alzheimer’s.  Click to learn more about her new book, Fighting For My Life” Mark your calendar and make plans to join us.  Details to follow.

News to know:

Whether you are living with Alzheimer’s, cognitive impairment, a caregiver or simply concerned about your brain health, the A-LIST wants to understand what “loss of self” means to you when it comes to this disease.  Take this 2-question survey

Your answers to A-LIST surveys are making a difference. Click here for the latest Pulse of the Community forresults for surveys on the emotional toll of living with or caring for someone with Alzheimer’s, the role of faith, and caregiver relationships with physicians. Caregivers reported feelings of frustration (86%) and fear (70%). A-LIST is an initiative of UsAgainstAlzheimer’s.  Other findings revealed that:

  • Both people living with the disease and caregivers are motivated and inspired by their own diagnoses, or the diagnoses of loved ones, to change their outlook on life and live each day with positivity and hope.
  • The majority of caregivers say their faith sustains them, but they want more support from faith communities. In response, read what some faith leaders say about the opportunities and challenges they face in supporting those living with dementia.
  • While more than 60% of caregivers believe their doctors know they’re caregivers, almost 75% of clinicians provided no advice on caregiving.

A-LIST research reveal a consistent truth among people with Alzheimer’s and caregivers alike – the need to stay engaged, hopeful, and empowered. It is no wonder that nearly half of caregiver said their best advice to others in their position, said to stay positive, be proactive, seek help, and take care of yourself. Words to live by.

A July 18, 2019 Scientific American article focused on how the latest thinking about Alzheimer’s disease is pivoting toward prevention, and a “cocktail” drug approach including addressing amyloid and tau build-up, and inflammation. There are 102 drugs being tested right now in patients, yet few researchers believe in the prospect of a magic bullet. Scientists think that it’s more likely that a combination of approaches will be needed to prevent, treat or cure Alzheimer’s, similar to how a drug cocktail is needed to treat HIV. 

Click to read a report from UsAgainstAlzheimer’s on the positive impact of paid family leave on dementia caregivers. our research

UsAgainstAlzheimer’s (UsA2) released “Preparing Us for a Cure,” three research products on key areas of Alzheimer’s disease that are aimed at readying our healthcare system so that when treatments and a cure are ultimately developed, patients and caregivers aren’t forced to wait 10 more years for the healthcare system to catch up to the science.  George Vradenburg, chairman and co-founder of UsAgainstAlzheimer’s, stated,  “We can’t afford to wait for access and payer issues, reimbursement, and other systemic challenges to be addressed down the road. To read more about key findings, please click here.