Weekly ACA’s Weekly Email March 5, 2021

Join AFTD Ambassador, Corey Esannason, for a Virtual Meet & Greet for young adults,  between ages of 20 and 45, with a parent with FTD, Thursday, March 11, at 7:00 pm.  Click this flyer for more information.

Upcoming Webinars from Alabama Lifespan Respite Resource Network (alabamarespite.org):

  • There is No Distance in Caregiving, March 13, 10 CT
  • Just enough Grace, March 20, 10 CT
  • Caregiving is Not a Life Sentence, March 27, 10 CT

What are they trying to tell me?  Looking at Behavior as Communication, March 16, noon CT  https://www.alzoc.org/event/what-are-they-trying-to-tell-me-looking-at-behavior-as-communication-via-zoom-03-16-2021/

Complex Care Management for People Living with Dementia (National Alzheimer’s and Dementia Resource Center, March 11, 2021 at 1:00)    ​

Understanding and Overcoming the Challenges of an Alzheimer’s Diagnosis (Home Instead, Inc., April 1, noon CT)

Zoom Support Groups available online:

New Study Finds That Prolonged Social Isolation May Lead To DementiaIsolation or loneliness in older adults is associated with a 50% increased risk of developing dementia, a 30% increased risk of incident coronary artery disease or stroke,  and a 26% increased risk of all-cause mortality.”

 Many of us are mentally and physically tired from the stressors and uncertainties of this past year. This feeling of burnout and hopelessness is called emotional exhaustion. Mental health experts explain the signs and symptoms of emotional exhaustion and how to navigate burdensome times by setting boundaries and refilling emotionally. 

Check out these tools from AARP to help learn your risk for social isolation and get tips for staying connected.

·         Connect2Affect.org has tools that can help you assess your risk for social isolation and find support services in your area.

·         Social Isolation Risk Assessment – a questionnaire to help you determine how connected they are, and which resources would benefit them most.

·         Social Check-In – an assessment you can take using just your voice to learn whether you may be at risk of social isolation. To get started, just ask Alexa or Google to “Launch Social Check-In.” Simply answer a few questions, and then you will receive a text message with your results as well as practical tips to feel more connected.

AARP and the Elizabeth Dole Foundation provide a free Respite Relief program helping those looking after loved ones who have served in the military.  https://www.aarp.org/home-family/voices/veterans/info-2021/military-caregivers-pandemic-respite-relief.html

Check out free podcast for those with dementia and their caregivers:

https://alzauthors.com/podcast/

Abnormal walking patterns may be an early indicator of dementia caused by Alzheimer’s disease (AD) and may distinguish it from other neurodegenerative and cognitive disorders, new research suggests.  Results of a new study show that a high degree of variability in gait was associated with lower cognitive performance, and it accurately differentiated between AD and the other conditions studied.  Early Motor Signal Specific to Alzheimer’s Identified (medscape.com)

The Association of Frontotemporal Degeneration provides an in depth look at corticobasal degeneration (CBD).  CBD is a rare neurodegenerative disease that results in nerve cell loss, scarring, and shrinkage of the deeper layers in the brain’s frontal and parietal lobes. (Corticobasal syndrome, meanwhile, is its most common presentation based on the pathological symptoms.) Due to their similar presentations, CBD often is initially diagnosed as Parkinson’s disease. Early CBD symptoms include rigidity, slowness of movement (bradykinesia), and involuntary muscle contractions (limb dystonia) and spasms (limb myoclonus), often occurring on only one side of the body.   PinFTDcare_winter_2021.pdf (theaftd.org)

The Humans of Dementia Storytelling Contest is accepting submissions until April 22.   This year’s contest, for high school or college in the U.S. or Canada is focusing on intergenerational storytelling and will accept written and photo submissions featuring individuals currently living with or who have passed away from Alzheimer’s disease or a related dementia.