ACA’s Weekly Dementia News, September 11, 2020

Calendar: 

ACA’s annual Walk will be virtual, the first week in November.  To learn more about Move for your Memories visit our websitewww.alzca.org and click on the Walking to Remember icon to review the details – including how to get your free Team Leader t-shirts (order by Monday, August 24).  Or go directly to www.alzca.org/walk-team-registration

Home Instead webinars, every Tuesday and Thursday, noon – 1 CT, with Jay Jones.  1.2 Nursing/1.0 SW Alabama Continuing Education Units,

Pre-Register for ZOOM passcode @ stayhomeinstead1@gmail.com

  • Sept 15 – “Creative Engagement: Meaningful Environments & Activities for Individuals with Memory Care Issues”
  • Sept 17 – MSSO – “Common Legal Issues in Healthcare” Lyndsie   Curry, J.D.
  • Sept 22 – “Preventive Health Under The Affordable Care Act”
  • Sept 24 – “Protecting Seniors from Fraud: Current Trends”
  • Sept 29 -“Omega 3 – Value of Supplements”

Smart Solution Assistive Technology Workshop for caregiver, Tuesday, September 15, 1:00 – 2:00,  CT.  Alabama Respite welcomes Kevin Braswell of Smart Solutions for this virtual workshop on total home assistive technologies (AT) and provide resources to access AT financial waiver assistance.  Register by Sept. 11, bhuey@ucphuntsville.org or call Brittney at 256-859-8300.

Setting Boundaries as a Caregiver, Wednesday, Sept. 16, 9-10 a.m CT.
The Emotional Side of Caregiving,  Monday, Sept. 28, 1:30-2:30 p.m CT.

Alabama Lifespan Respite Webinars with South Alabama Training Specialist Vonda Reeves.  Visit alabamarespite.org for registration and additional information.

M4A webinar for Shelby County residents, Dementia:  The Disconnect, Plugging Caregivers into Resources, Tuesday, September 15, 7 – 8:30 pm CT.  sponsored by the PANDA Project. https://mailchi.mp/f1a990e89aea/scehhrgant-7878110?e=61310311ad

M4A is offering free online training the first and third Wednesday of each month, from 10:00 am – 11:30.  CEU’s offered.  For more info: https://mailchi.mp/eea68af4b62f/scehhrgant-7873502?e=029e09a760​

September 16:  Documents and Property Arrangements to Prepare for Death & Disability

AFA webinar, Don’t Put a Hold on Health:  Getting Medical Care that’s Not COVID Related, Thursday, September 17, 2-3 CT.

https://alzfdn.org/event/care-connection-webinar-dont-put-a-hold-on-health-getting-medical-care-thats-not-covid-related/

Disparities in Alzheimer’s, a Facebook live virtual panel discussion  hosted by the UAB Alzheimer’s Disease Center, Saturday, September  19, 10:30 am CT.   https://www.facebook.com/UABADC

UsAgainst Alzheimer’s webinar, Advancing Resources for Dementia Caregivers Dealing with Neuropsychiatric Symptoms, Tuesday, September 29, 10 – 11:30 am CT.  The interactive workshop will focus on the impact of hallucinations and delusions associated with dementia.  https://action.usagainstalzheimers.org/a/rsvp-workshop-dementia-related-hallucinations-delusions?emci=c261f119-d6f1-ea11-99c3-00155d039e74&emdi=9a09e5f9-e1f2-ea11-99c3-00155d039e74&ceid=812012

Join ACA & CJFS for a book launch for Surfing the Ways of Alzheimer’s, a teaching memoir by ACA board member, Renee Harmon, Wednesday, October 7, 1 pm CT.  The family practice physician offers guidance and insight on her journey caring for her husband who had early on-set Alzheimer’s.  The book is the #1 New Release in its category.  See the attached flyer to register.  Buy the book here: https://www.amazon.com/Surfing-Waves-Alzheimers-Principles-Caregiving-ebook/dp/B08GCZBL2K/ref=sr_1_1?dchild=1&keywords=renee+brown+harmon&qid=1598460729&sr=8-1

The Women’s Alzheimer’s Movement  is sharing a documentary series with you, Alzheimer’s – The Science of Prevention.   It was produced by neurologist David Perlmutter, M.D, and will give you the inside scoop on how and what to do for your long-term cognitive health.  The series is available, from September 9th – 20th.  Register here to watch this series for free and learn from leading experts in brain science.

New CJFS Virtual Bereavement Support Group, first meeting, 1 pm CT, Thursday, October 8.  To learn more contact Gail Schuster,gail@cjfsbham.org or 205-879-3438.

UsAgainstAlzheimers is hosting the 2020 virtual National Research Summit, October 19-21, here is the registration link

Visit AFA’s Facebook page to take part in fun online programs.  Enjoy art, music and movement.   Programs can be viewed at any time during or after the event.

Zoom Support Groups available online:

Alzheimer’s News:

The National Institute on Aging, part of the National Institutes of Health, has named the University of Alabama at Birmingham as an exploratory Alzheimer’s Disease Research Center. The UAB exploratory ADRC will join the network of 31 ADRCs in 21 states, and is the only exploratory ADRC in the four-state region of Alabama, Mississippi, Arkansas and Louisiana.  ADRCs are located at major medical institutions across the United States. Researchers at these centers work to translate research advances into improved diagnosis and care for people with Alzheimer’s disease and related dementias, as well as to find ways to treat and possibly prevent these diseases. They also contribute substantially to major national neurodegenerative disease research initiatives.  Read more at uab.edu/news

Researchers at the University of Alabama at Birmingham are on the track of a gene that might play a role in the development of Alzheimer’s disease. The research team is studying a gene called BIN1, which was first linked to Alzheimer’s disease in 2009.  BIN1 was identified as a risk factor for Alzheimer’s following large scale studies called genome wide association studies, which looked at the genomes of thousands of people with and without Alzheimer’s disease.  Read more…

8 Go-To Foods This Nutritional Psychiatrist Eats for Better Brain Function: If you want to take brain health into your own hands, the easiest way may be through food. READ MORE

How Coffee Protects the Brain & Supports Memory: It’s no secret that drinking coffee has many fast-acting effects, but coffee consumption also has some long-term effects like possibly reducing your risk of dementia. READ MORE

Lowering Blood Pressure May Help Prevent Dementia: High blood pressure doesn’t just affect your heart, it can also affect your brain. READ MORE

Alzheimer’s is the most common cause of dementia, but many have never heard of another common cause, Lewy Body Dementia (LBD). LBD is often misdiagnosed as Alzheimer’s and is what Robin Williams suffered from before his death in 2014. “Robin’s Wish,”just released on Sept. 1, details this common mistake and how the disease changed Robin’s life.  CLICK HERE to learn more and find where to watch.

UsA2 has published a new video podcast and blog series, “Giving Voice to What Matters Most,” a Zoom conversation with advocates Greg O’Brien, Rev. Tracey Lind and Daisy Duarte. Learn more about living with Alzheimer’s, Frontotemporal dementia, and being care partner for a family member. “Giving Voice” episodes here:

Does Dementia Cause Falls?  Why falls are so common in those with Alzheimer’s disease and other dementias?  Learn more from Dr. Andrew Budson. https://www.psychologytoday.com/us/blog/managing-your-memory/202008/does-dementia-cause-falls

Trish Laub is the author of The Comfort in their Journey .  During the end-of-life process of each of her parents, she came to realize that with a respect for their lives, came specific language and word choices in talking about death.  She says, “there was a beauty in the end of my parents’ lives that is beyond words. Of course there was great sadness, deep grief really, and a bit of relief that they were leaving me before it became impossible to maintain their dignity and the quality of their lives.”  Learn more

Many people think of virtual and augmented reality as popular forms of entertainment — but these technologies are becoming more central to healthcare, now a rapidly developing field with companies specializing in sectors from surgical training to neurological care.
Learn more

Among America’s aging prison inmates, dementia is growing more prevalent. This reality came into sharp focus when, this summer, an inmate with Alzheimer’s was executed, sparking discussion about the humanitarian issues involved in the incarceration — and execution — of people who no longer understand why they are in prison.  Learn more 

ACA friend, Don Wendorf, says sing-a-longs help promote the notion of doing “with” instead of “for” our loved one with dementia.  Attached are his zoom singalongs

ACA friend, Lynda Everman says that thanks to advocacy efforts, the US Postal Service has reinstated sales of the Alzheimer’s Disease Research Semipostal Stamp effective October 5.  Before it was withdrawn in November 2019, over 8.2 million stamps were sold raising $1,061,777 for NIH supported research to advance better treatments, prevention, and cure of Alzheimer’s and related dementias:  https://about.usps.com/newsroom/national-releases/2020/0904-alzheimer-semipostal-fundraising-stamp-returning.htm